Friday, 7 July 2017

Thunderbirds Are GO!


ME: I have a bag of needles and a sharps bin because THUNDERBIRDS ARE GO!
SISTER: Ooh, stabbies! F.A.B!

Yes, we are go! IVF information session was a success and suddenly, everything is happening! I have a bag of needles and a sharps bin, I’ve learned how to do 3 different types of injection that I’m going to need, and we’ve signed all sorts of scary consent forms.

Leading up to the information session, I was definitely getting nervous, mainly because no-one had made it clear what to expect from it. After digging through forums and articles online, I’d worked out that I’d probably be taught how to do the injections and we would start working out a schedule for things, but part of me didn’t dare to hope that it would actually kick-start things properly! My husband was definitely surprised when he realised that it was really beginning, rather than just giving us some more theoretical and hypothetical information!

Yet here we are, waiting for the start of my next cycle (should be within a few days) so that I can call the clinic and they’ll tell me which day to take my first injection.


“In the event of your death…”

Got to love a question that begins that way.

Being confronted by your own mortality when you’re discussing creating a new life is rather discomforting.

Pages and pages of consent forms, some with easy questions to answer and others that required more thought and discussion – things that we’d never even considered we’d have to consider!  What we would like to happen to any embryos that we create and are in storage, should we both die while going through IVF, for example.

I know it isn’t exactly a cheery thought but if anyone else starting IVF ever ends up reading this blog, I think it’s important that I not sugar-coat the less than pleasant aspects.

All that being said, the consent forms are important and signing them made everything feel so real. This is really, honestly and truly happening.


Oh how true this is!

If we get a baby out of it, it will be worth it. If we get a baby out of it, it will be worth it. Lather, rinse, repeat.

I don’t actually have a problem with needles or injections but the idea of injecting myself every day for weeks on end (and then multiple times a day) is daunting, especially because I don’t yet know how my body will react to the medication.

Will I be grumpy, will I be overly emotional, will my body change? Will I develop Ovarian Hyper Stimulation Syndrome and get so poorly that they have to abandon the cycle? I know that this is rare and a worst case scenario, so am trying not to worry myself unduly, but for someone with a propensity towards anxiety, a sense of zen and calm isn’t easy to achieve!

So what next?

We’ve got to take my prescription to some pharmacies to compare prices; I have to call the clinic on day 1 of my next cycle; and we have to attend an information and consent session for the Embryoscope (essentially CCTV for the embryos).

All positive, everything moving forward, and while I'm not going to get my hopes up too high, it feels good to be going in the right direction. 


Monday, 3 July 2017

Not long to wait!

When you're chewing on life's gristle,
Don't grumble, give a whistle!
And this'll help things turn out for the best.

Lately some, shall we say ‘interesting’, things have been happening at work and it would be very easy to become completely stressed out and overwhelmed by it all. I know that this isn’t healthy for me though, especially with IVF looming, so I’m taking Monty Python to heart and concentrating on the positive things.

My husband
My not-so-puppy-anymore
Have started going swimming a few times a week
Managed to swim 1km in 40 minutes
I’m starting a new job in September
I found the bag of summer clothes that I thought I had accidentally given to charity when having a sort-out (whoooole other ridiculous story, there)
Slimming world friendly (syn free!) non-alcoholic fake Pimms recipe
Anyway…

Everything has had a while to sink in now, and it’s funny how quickly I’ve become accustomed to the idea of IVF being normal. Having read a few IVF blogs and posts on the pregnancy/trying for a baby forums, there seem to be lots of people who didn’t tell anyone they were going through IVF, and while I totally understand where they’re coming from, that just isn’t me.

Everyone deals with things in their own way, but I’ve found myself being totally upfront about it, even explaining about my blocked fallopian tubes to some people. In some cases, this has been after throwaway comments at work (“You wouldn’t be this organised and ready for work if you had children” for example), and rather than sit and sulk in my classroom, I’ve told them. Feels good.

We’ve come to a decision, you see. As part of my month as a human-pincushion-slash-vampire’s-vending-machine, I had a test to see roughly how many eggs were left in my ovaries.
Given our luck with these things so far, I’m sure the result is predictable.

Yep, low egg reserve.

Not dire, not so much that they’ve said IVF won’t work, thank goodness. According to the confusing table on the information sheet, I have the egg count of an average 37 year old, which isn’t great seeing as I’m only 27. Like I said, not dire but enough to scare us into realising we need to do this NOW.

If we wait as I lose weight, by the time my BMI is right for NHS funding (even though it isn't that far off) we’ll still have to wait months to start, and if it takes more than one go…

Basically we realised that the sooner we start IVF, the better chance we’ll have of getting enough eggs to mature in each cycle.

Anyone got a spare £5,000?
Or, it will certainly feel this way!

Anyone? No? Ok… we’ll find it ourselves.

We scraped together the cash.

We confirmed that if we self-funded a cycle and it was unsuccessful, we’d still be eligible for an NHS funded cycle in the future.

I booked our first appointment – the information session where we will sign all the consent forms. The earliest one was 6 weeks away, so I’m glad we decided to go for it!

That was almost 6 weeks ago now, and on Thursday evening we’ll have been to the information session and will have a bit more of an idea about when we’ll be starting things properly!

Honestly, after all the bad news we kept getting, taking control of the situation rather than just waiting has felt really empowering.

Now to decide whether I feel excited, nervous, or nervously excited. Hmmm.

Friday, 12 May 2017

Positivity

It’s officially been over a week since we found out that we’ll need IVF. Subfertility is the accurate word, according to the copy of the surgeon’s notes that we’ve now been given, because apparently ‘infertility’ isn’t a word they like to use anymore as it’s too absolute. I suppose the distinction is important – infertile would suggest that I cannot have children but actually so far there is nothing to suggest I won’t be able to carry and give birth to a child. So long as the doctors can get all the relevant parties where they need to be, that is.

As is probably obvious, this week has been a bit of an emotional rollercoaster, and I have no doubt that despite my current positivity, there will be plenty more boxes of tissues needed in this house as we continue this journey!

Staying positive however, I wanted to share one thing that my Mum said to me this week that has really stuck. She asked me “Well, what’s changed?”

I (as a blubbering mess) replied that we need IVF to have children (had she not been listening to anything I’d told her since the hospital?!)

“You’ve always needed IVF to have children. You just didn’t know it before.” 



And you know what? She’s right. I haven’t had some horrific accident and suddenly been unable to have children, while I would have been able to before. Subfertility has been with me for a long time – possibly since I was a teenager – and the only difference is that now, we know about it.

Actually (I suddenly found myself thinking) doesn’t this mean we’re better off now we know? My fertility hasn’t changed but our ability to do something about it has.

Wow… talk about a change of perspective.


So that is how I’m choosing to look at it right now. I’m sure it won’t be long before I feel terribly sad again, but at the moment I have to look at this news as something positive. Not knowing about it wouldn’t change the fact that I’m subfertile. Knowing about it has actually given us our best chance at becoming parents, so as devastating as it felt at the time… I think it may, truthfully, be good news. 

Wednesday, 10 May 2017

Start of the journey

Natural conception impossible. IVF recommended.

Last week, my husband and I heard those words at the end of a very long and very difficult day and it has completely torn the rug out from under our lives. It’s one thing to be struggling to have a baby, suspect that you will need extra help, and go for investigations, but totally another thing to actually hear that it is never going to happen without significant medical intervention.

So, let’s whizz back to the beginning!

A very good place to start... 

Interestingly, the beginning is before we started trying for a baby, back in 2015, when I went for a smear test and the nurse found a polyp on my cervix. She was quick to reassure me that it wasn’t dangerous, and I was referred to the hospital. The specialist explained, “There’s no point removing it as it won’t affect your chances of having children and it isn’t causing you any symptoms.”

So… I put it out of my mind.

Fast forward to January 2016, when I got married and immediately stopped taking the pill. Perhaps foolishly, we assumed that I’d fall pregnant within a few months and when it didn’t happen, I naturally began to wonder if something was wrong. Lots of people gave us the (very good) advice to not worry about it, that it takes longer for some people, that it doesn’t mean there is actually something wrong. All good advice. All well meant. Still, I just couldn’t shake that feeling.

Everyone in my family got very used to hearing, “I know the doctor said that the polyp wouldn’t prevent pregnancy but what if it is?”

I have tracked my symptoms and periods on an app, I took ovulation tests, I understand terms like ‘follicular phase’ and ‘basal body temperature’, and a hundred other things that would be extremely familiar to other women struggling to conceive.

Still nothing.

And that polyp. Always at the back of my mind. What if it’s stopping us?

Approaching a year of us unsuccessfully trying to conceive, my husband insisted that I book an appointment with my GP. We know that often they won’t refer you until you’ve been trying for 2 years, but he felt that if I made my worries about the polyp clear, then she might agree that it is causing problems and refer us anyway. She did.

A year and 2 months after we started trying, we went to our first appointment at the fertility clinic (unhelpfully referred to as ‘infertility’ on the referral letter. Thanks for the confidence, NHS).

We had all the standard tests booked in – I was weighed, scanned, booked in to become a human pincushion, my husband made to give a sample. Then the nurse doing the internal ultrasound saw the polyp, her eyes widened and she said, “Well… that’s rather large. Think that will need to come out!”


The doctor took the nurse’s advice and referred me for surgery to have it removed. She also booked in for the surgeon to do a hysteroscopy (camera put up into the uterus), and a laparoscopy and dye test (keyhole surgery to observe the outside of the uterus while dye is injected to test the freedom of movement through the fallopian tubes) while I was already under anaesthetic for the polypectomy.

2 months later, I got a letter with my surgery date (5 days later!) and although I was nervous to go under anaesthetic, I felt good. I felt like something was happening and we were on the road to becoming parents! It felt good to be busy getting ready for hospital, rather than just waiting.

4.5.17 – I arrive at the hospital at exactly midday, for my afternoon surgery. A simple procedure, going home the same day, no need to even really bring anything with me.

An hour later, we were seen by the consultant, who expressed his scepticism that the polyp was causing our infertility. He said that if he saw the need to remove it then he would, but doing so could cause a lot of problems so he wouldn’t do it if he didn’t think it was necessary. I had to give my consent for about 6 different procedures and would only know which ones had been done once I woke up. Still, it would be worth it if it helped us have a child, so I swallowed my (by this point quite considerable) anxiety and went back out into the waiting room.

Another hour and another blood test later, I was given a gown and shown to a small room where I was told that I could wait to be walked down to theatre, because there were no beds available and it wouldn’t be long. My husband was told that he should come back in about 2-2.5 hours to sit with me as I recovered.

I sat. I waited. Waited. Read a noticeboard all about pressure ulcers. Waited. Read about a hospital wide competition to train all staff about pressure ulcers – closing date 14th January 2013. Waited some more. Heard my husband’s voice asking where his wife was recovering.

Needless to say, he was livid when he realised that not only had I not gone to surgery yet, but that no-one had been in to check on me or even seemed to know I was waiting in that room. So he came to wait with me and also read about pressure ulcers.

Eventually I did go down to theatre, then spent 2 hours in Recovery, waiting for the ward to answer the phone to tell the Recovery staff if there was a bed for me. Once I was up on the ward, I asked my husband if he could find out when the consultant would be coming round to tell me what procedures had been done. The nurse’s response was “Didn’t he speak to her when she was in Recovery?”


No. No he did not. If he had done, I would not be asking.

She would find the on-call doctor to look at my notes and tell us, the nurse promised. This is when an already exhausting and emotional day became devastating.

I feel so sorry for the on-call doctor. He had never met us before, didn’t know our history at all, and accidentally ended up giving us the news that my fallopian tubes were so blocked that without IVF, we’d never conceive.

He was reading through the notes, telling us what the surgeon had done and what hadn’t needed to be done, and I could see the exact moment when he’d begun reading the sentence, had realised what it was about to reveal, but couldn’t stop there or we’d know something was wrong and would panic.

Heartbroken. Numb. Practical and making plans. Utter despair. Anger – lots of anger.
Anger at the consultant for not explaining what had been done during my surgery (because he knew the results, he wouldn’t have revealed them before our results appointment). Anger at the local clinical commissioning group for only allowing one NHS funded cycle of IVF. Anger at God (who I don’t even believe in!) for allowing so many people who don’t care to have child after child that they mistreat, but not even giving us the chance to have one, very loved child. Anger at myself – is it something I’ve done that has blocked my fallopian tubes and scuppered our chances?

Natural conception impossible. IVF recommended.

It has helped though, to think of it as grief. It’s helped to know that I don’t have to feel silly for being this upset. So I will cry and cry some more, I’ll talk to my husband about it and write about it here. We aren’t giving up but I’m also not being foolish enough to think that it will be an easy journey.

First step on that journey is to lose weight – the NHS will only fund a cycle of the treatment if I meet certain guidelines and that means losing weight. I’m already a member of Slimming World (other weight loss and lifestyle change programmes are available!) so I’ve told my consultant and she’s giving me all her support to get my weight where it needs to be.


Onwards and upwards.

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